The School of Media Arts & Studies is very pleased that Dr. Jenny Nelson was recently featured by the Ohio University's Honors Tutorial College in their publication Inquiry which highlights HTC Research Apprenticeships.
In the article, Nelson discusses her motivation behind the PD Narrative Project and not only the role her research apprentices play in the project, but also how they are influenced by the project.
“A lot of what people know is about Michael J. Fox,” Nelson explains, referring to the most common source of America’s information about PD. The actor is a face for PD and the founder of The Michael J. Fox Foundation for Parkinson’s Research, which uses an online multimedia format to educate the public, fundraise for research, and create a network of people with the disease. Nelson admires what he has done and does not discount his impact on PD awareness. However, she feels that there is more to PD than what research-driven foundations like Fox’s present.
Nelson worries that the discourse foundations create around PD is influenced heavily by medical and health jargon and support group terminology. She feels that there are more human faces to put on the disease, so she spearheads the PD Narrative Project, an ongoing, online multimedia endeavor to change the public discourse about what it means to live with PD.
To learn more about the PD Narrative Project, visit the project website.
To read the complete article which appears in the 2013 issue of Inquiry magazines and includes information on the HTC Research Apprentices roles, follow the appropriate links below for your desired format: